The Ethics of Species Modification in the Environment
My current research explores how the ethical and policy dilemmas arising from the deployment of gene drive-modified organisms are framed in media and public discourses and how various socioeconomic forces (e.g., global philanthropic organizations, environmental activism, research communities, and stakeholders) shape the public dialogue on this biotechnological innovation. Gene drives based on the CRISPR-Cas9 gene editing system are a novel and powerful genetic engineering method that defies the laws of Mendelian inheritance by allowing genetic dominance of specific traits and their spread at an enhanced rate in nearly 100% of the next generation. While the technology has potential promising applications for the prevention of vector-born diseases such as malaria, dengue, and lime disease, in agriculture, and for ecosystem preservation, the impacts of introducing species modification directly into the environment are difficult to forecast. My analysis looks at how gene drives are perceived as technical, policy and political anomalies in the policy arena, and identifies what fundamental changes in the regulatory frameworks for biotechnology will be required to address this problem.
An Anopheles stephensi mosquito obtains a blood meal from a human host through its pointed proboscis.
Credit: CDC/Jim Gathany
COMPLETED RESEARCH PROJECTS
Public Representations, Ethical Issues and Policy Considerations in Predictive Genetic Testing (2014-2018, three published studies in BMC Medical Ethics, Journal of Science Communication, and Journal of Obstetrics and Gynaecology Canada).
The gene patent controversy on Twitter: A case study of Twitter users' responses to the CHEO lawsuit against Long QT gene patents
Media portrayal of non-invasive prenatal testing: A missing ethical dimension
Non-invasive Prenatal Testing and the Unveiling of an Impaired Translation Process
The Changing Landscape of Canadian and International Regulation of Stem Cell Research (2014-2017, a policy recommendation paper in EMBO Reports with funding from the Stem Cell Network and a book chapter forthcoming in an edited collection published by Nomos Publishing with funding from the German Federal Ministry of Education and Research (BMBF), within the project "Moral Frontiers of Regenerative Medicine Regarding the Use of Human Embryonic Stem Cells").
Media and Public Representations of Stem Cell Research and Therapy (2014-2017, three studies published in Stem Cell Reviews and Reports, Science Translational Medicine and Asian Bioethics Review with funding from the Stem Cell Network and the Canadian Institute for Genomics and Society)
Click on the link for a full text of our study on stem cell tourism and social media:
Representations of Stem Cell Clinics on Twitter
Click on the link below to access my publication in Asian Bioethics Review:
Click on the link below to read an article in Los Angeles Times about our study in Science Translational Medicine:
Stem cell hype: Media portrayal of therapy translation
The Angelina Jolie Effect: Media Representations and Public Attitudes Towards Predictive Genetic Testing for Hereditary Breast and Ovarian Cancers (2013-2015, with funding from Genome Canada, Genome Alberta, CIHR, Alberta Innovates-Health Solutions, and Genome Quebec)
Click on the link below to read an article in PLOS Blogs about our study in Genetics in Medicine:
Time Magazine Cover on 15 May 2013
Photograph: Melodie McDaniel / Trunk Archive
Citizens' Jury on Internet Voting in Edmonton (2012-2013, Principal Investigator, with funding from the City of Edmonton)
Partnership between the University of Alberta's Center for Public Involvement and the City of Edmonton to assess public attitudes on the adoption of e-voting in civic elections through surveys and stakeholder consultation and engage citizens directly in decision-making through a Citizen's jury process.
The Edmonton Citizens’ Jury on Internet Voting
Public Engagement with Internet Voting in Edmonton: Design, Outcomes, and Challenges to Deliberative Models
Citizen Jury Extended Interview with Dr. Kamenova & Dr. Goodman
Center for Election Science